Idiopathic intracranial hypertension

by Em   Oct 14, 2017


My head's in pain
my joints all ache
I can't take anymore
for goodness sake

my sight is going
my memory too
from all that you
put me through

It's already ruining my life
this iih takes everything
leaves me laid up for days
my ears constantly ringing

tablets aren't helping so
my cfs pressures rising again
I'd rather have another lumbar puncture
than continue with this head pain

you don't know what it's like
so please don't judge me...

I've had this debilitating disease
since September 8th 2003.

© Em

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Latest Comments

  • 4 weeks ago

    by Mayday

    That sounds absolutely exhausting...I have to agree with the both Mark & Brenda! I just can't imagine the strength it takes to go through something like this for soo long x.x but you obviously have a tremendousss amount of it 3:

  • 1 month ago

    by Mark

    So long you've had this. Em I'll pray for you with brenda....and poets can make pretty good compelling prayers!

  • 1 month ago

    by Brenda

    Oh Em, I so wish I could take your pain away. This just sucks! I pray that your doctor's find a successful course of treatment that helps with your symptoms and pain. Sending you strength and love my friend -

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