Be still my heart...what a lovely piece! All through out the poem your strong spirit is evident which is heart-warming... your love and acceptance of your daughter and her syndrome... to take it as a prize is selfless. You are surely proud of your daughter and she should be proud of the strong and loving mom that you are. A truly inspiring piece.
Soft. The first word that comes to mind after reading this. Like coming home after a long day and just lying down momentarily in bed as the clouds pass by your window. Nothing else in this world comes close to a parent's love.